Author
Assemblymember Ed Chau (D, 49th District)
The Bill
AB 13 would require the Department of Technology to offer guidelines and require impact assessments when the state uses high-risk algorithmic decision systems.
Full Bill Text
The Outcome
Failed to pass both houses. Must pass CA Assembly by January 31, 2022 or die.
Our Analysis
With the increasing use of automated decision-making systems by state agencies posing a risk of discriminatory impact, we supported AB 13 as a first step to building trust in the public sector use of these systems and an attempt to thwart automated bias that harms the health and wealth of communities of color and low-income Californians.
Author
Assemblymember Marc Levine (D, 10th District)
The Bill
AB 814 would extend privacy protections to information collected for COVID-19 contact tracing.
Full Bill Text
The Outcome
Failed to pass both houses. Must pass CA Assembly by January 31, 2022 or die.
Our Analysis
The COVID-19 global pandemic led to the creation of contact tracing programs to enable state agencies and individuals to better understand the spread of the virus—however there are concerns that information collected for those purposes may be used or sold in the private sector.
We supported AB 814 as necessary to protect the personal information of Californians whose information may be collected for contact tracing, and to help encourage Californians to participate in these programs. The success of contact tracing programs depends on voluntary use by people that trust that their information is secure and used only for public health purposes. A failure to pass AB 814 would be a blow to both.
Author
Assemblymember Marc Levine (D, 49th District)
The Bill
AB 825 requires businesses to notify people when a data breach exposes their genetic information.
Full Bill Text
The Outcome
Signed into law on October 5, 2021.
Our Analysis
Data breach notification requirements must define what personal information is covered when a data breach occurs. As the scope of consumer technology expands, so must the scope of that definition.
We supported AB 825 to ensure that genetic information collected by direct-to-consumer testing kits has the same data breach notification requirements as any other personal information.
Author
Assemblymember Ed Chau (D, 49th District)
The Bill
AB 1252 would have broadened the definition of personal health record information under the Confidentiality of Medical Information Act to include personal information collected by consumer-directed health and fitness wearables, apps and services.
Full Bill Text
The Outcome
Failed to pass both houses. Moved to the inactive file at the request of the author.
Our Analysis
Massive amounts of personal information about health and fitness are collected by apps, services and products that fall outside current legal protections.
We supported AB 1252’s expansion to the Confidentiality of Medical Information Act, which would have extended much needed protections to health information collected by apps and products that consumers download or use under their own volition and not under the direction of a healthcare provider—an issue we’ve championed as far back as 2013.
Author
Assemblymember Ed Chau (D, 49th District)
The Bill
AB 1436 would extend the protections of the Confidentiality of Medical Information Act to health information collected outside the traditional care setting and by patients themselves.
Full Bill Text
The Outcome
Failed to pass both houses. Must pass CA Assembly by January 31, 2022 or die.
Our Analysis
We supported AB 1436—a gut-and-amended to carry the substance of AB 1252—to extend existing health privacy protections to innovative medical technology not contemplated when current laws were put in place and bring current regulation into line with the reality of how Californians integrate consumer technology into their health care.
Author
Senator Tom Umberg (D, 34th District)
The Bill
SB 41 established the Genetic Information Privacy Act which
- places some restrictions on how direct-to-consumer genetic testing companies can operate
- empowers consumers of those companies with certain rights of access and deletion
- prohibits those companies from disclosing a consumer’s personal information, except under certain circumstances
Full Bill Text
The Outcome
Signed into law on October 6, 2021.
Our Analysis
Direct-to-consumer genetic testing kit companies (e.g. 23AndMe and Ancestry.com) providing at-home DNA testing kits get detailed information about their customers' genetic backgrounds—information that can be incredibly revealing for the individuals purchasing the services and their relatives.
We supported SB 41 to build upon the legal foundation of the California Consumer Privacy Act and ensure that additional protections are in place for genetic information collected by at-home genetic testing kits.
Author
Senator Scott Wiener (D, 11th District)
The Bill
SB 210 would have introduced privacy protections into the Automated License Plate Recognition systems used by the California Highway Patrol—requiring license plate information to be deleted after 24 hours unless that license plate already appeared on a hot list to be targeted.
Full Bill Text
The Outcome
Died in committee.
Our Analysis
Current law permits the Department of the California Highway Patrol and law enforcement agencies to collect, maintain and share license plate data captured by license plate reader technology for 60 days. However, license plate data also reveals precise geolocation information over time—especially sensitive information that could be harmful to an individual, if exposed through a data breach.
We generally support data minimization requirements for both the private and public sectors as a whole, and therefore supported SB 210.
Author
Senator Nancy Skinner (D, 9th District)
The Bill
SB 746 would have expanded the California Consumer Privacy Act (CCPA) to permit consumers to request that a business disclose to them whether it uses personal information collected about them for a political purpose.
Full Bill Text
The Outcome
Died in committee.
Our Analysis
We generally support additional transparency and disclosure requirements under the California Consumer Privacy Act, and therefore supported SB 746.