Health

The Genetic Information Privacy Act is a California law that places data collection, use, security and disclosure requirements on direct-to-consumer genetic testing companies and provides consumers with access and deletion rights.

We—with the support of a group of privacy and consumer advocacy organizations—submitted comments to the California Privacy Protection Agency addressing its proposed rulemaking under the California Privacy Rights Act of 2020.

Last year the California legislature continued to grapple with issues that were exacerbated by the ongoing COVID-19 global pandemic. As they were in 2020—although not to the same extent—legislators were forced to pare back their bill packages again in 2021.

Proposition 24 (California Privacy Rights Act)—passed by more than 56% of voters in November 2020—will amend the

Proposition 24 (Prop 24), also known as the California Privacy Rights Act of 2020, is on the California ballot this November. If passed, it will change what businesses can do with personal information and Californians’ rights associated with their information.

If you live in California, you have the right to ask a company to tell you what personal information it has about you, stop it from selling personal information, delete the information or allow you to download it.